Patient Education

Demystifying Medicine Scleroderma Series

The following videos can be found on the Demystifying Medicine You Tube channel.

Learn more about the McMaster Demystifying Medicine Program at demystifyingmedicine.ca

Scleroderma Renal Crisis

A Tour of the Various Drug Therapies for Scleroderma

Unmasking the causes of Scleroderma

The Relationship between Scleroderma and Pulmonary Fibrosis

What are Autoimmune Diseases

Exploring Raynaud’s Phenomenon

Eating Well with Scleroderma

Diet and nutrition play a large part in maintaining and increasing our health. This is especially the case for people with chronic diseases like scleroderma, where some of the symptoms may affect the steps taken towards a healthy and nutritious diet.

The Scleroderma Foundation has published a series of guidelines to assist people in choosing their diets and designing them with individual needs in mind, below you'll find a link to these guidelines as well as other resources that may assist you in designing a diet for your needs.

Scleroderma Foundation's Guidelines for Eating Well

The University of Michigan's Scleroderma Program Diet Suggestions

The FODMAP Diet

Below is a link to the webinar for those who were unable to view the initial talk or wish to review the content discussed at the session.

http://sso.etherelive.tv/

Scleroderma Nutrition Presentation:

Download here

Still have questions about nutrition?? Visit Eat Right Ontario for more information. You can even to speak to a Registered Dietician free of charge regarding your specific nutrition related questions or concerns!

https://www.eatrightontario.ca/en/aboutero.aspx

Presentations

Click on any of the links below to download the presentation.
Name File
Erectile Dysfunction In Scleroderma Download
Scleroderma 101 Download
Scleroderma Nutrition Download
Skin-Care Wound Management in Systemic Sclerosis Download

Patient Education 2017

Living with Scleroderma: Education Forum for Those Affected by Scleroderma

On September 25, 2017, the Hamilton Scleroderma Group, in partnership with the Scleroderma Society of Ontario, hosted the 3rd Annual Patient Education Event.

The presentations from this event can be viewed on the Demystifying Medicine website by clicking here.

Patient Education 2016

Living with Scleroderma: Education Forum for Those Affected by Scleroderma

On November 29th, 2016, the Hamilton Scleroderma Group, in partnership with the Scleroderma Society of Ontario, hosted the 2nd Annual Patient Education Event.

Name File
Shared Decision Making and the Patient-Physician Partnership Download
Lab Tests in Scleroderma Download
STRESS, COPING, & SCLERODERMA: Activity & Meaning Download

Patient Education Forum 2015

Patient Education 2014

Scleroderma: an Odyssey for One with Dr. Alan Tyndall

If you have attended the session in person or through the webinar please complete an evaluation of Dr. Tyndall's talk online by clicking on this link which will redirect you to the survey monkey.